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Chronically ill, more than ten years before a diagnosis in one in three patients

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The ’20th Report on Chronicity Policies’ titled ‘Stop at the Plan’ presented in Rome. There are still too many differences in the district for the chronically ill

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The ’20th Report on Chronicity Policy’ titled ‘Stop at the Plan’ was presented in Rome at the Roma Eventi Congress Center, which aims to highlight the health inequalities faced by citizens suffering from chronic diseases. It was introduced by the CnAMC, the national coordination of the approximately 100 associations of chronic and rare patients. For the report, produced by Cittadinanzattiva, more than half of patients with chronic diseases reported long waits for checkups and diagnostic tests. It has been found that one in four citizens with a rare disease has to leave their place of residence to receive adequate treatment, one in three has waited more than ten years to receive a diagnosis and two thirds of patients have to pay the cost of psychological support . While about 2 million Italians suffer from rare diseases – many of these are pediatric patients – as many as 4 in 10 suffer from at least one chronic disease.

What the report says

To prepare the report, 871 patients and 86 presidents of associations of chronic or rare pathologies were interviewed. “The reasons for the delays in diagnosis are, for 2 out of 3 patients, the lack of knowledge of the general practitioner and for more than half the underestimation of the symptoms,” the official document reads. There are also delays in assistance, exacerbated by Covid: for 43% of those interviewed, the delays relate to long-term recognition of civil disability or guidance, for 55% checks and for 60% access to the first specialist visits and diagnostic tests.


One in three associations denounced the lack of specific ‘Diagnostic Therapeutic Aid Pathways’ that, based on the patient, determine the most appropriate treatment model for him. However, there are some regions that stand out in terms of patient care based on this model of care: Lombardy, Tuscany, Veneto, Emilia-Romagna and Lazio. Finally, in the past 12 months, approximately 11% of patients engaged in telemedicine programs, 72% frequently used the dematerialized prescription, and 53% activated the electronic medical record.

Source: TG 24 Sky

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